February 10, 2012 § Leave a comment
A few weeks ago I made it in to my neurologist for my twice-a-year checkup. I was a little nervous about this appointment, due to the fact that I strongly believe that I was misdiagnosed… and it was the neurologist that diagnosed me with Multiple Sclerosis in March.
A few days before the appointment, I had another MRI to check on the progress of “my MS”. While I would love to tell you that I completely expected the MRI to come back normal with no lesions, I didn’t. I fully expected this to be the worst MRI to date.
As I sat down in the office, we began to go through the recent MRI results. According to the MRI report, I do, in fact, have further disease progression. Which, again, this really wasn’t that surprising.
He asked how I was doing. I told him about the “relapse” that I had and that I am now improving from that quite well. According to the neuro, I am just now coming out of a “MS exacerbation ” that started back in early May.
He asked if I was still doing the “healthy stuff” and seemed somewhat curious about it, without directly saying so. When I originally told him that I was going a natural route, he made it very clear that he disagreed with me and that I should be taking some sort of immunomodulatory therapy, which would be Rebif injections or something along the sort.
He stated that what I was doing was probably fine and good for general health, but it probably wouldn’t help me in the course of my MS. This then led me to telling him that I had a Lyme test ran… before I could tell him wether my results were positive or negative, he literally just shrugged his shoulders! I had the test results in my hands, and he had no interest whatsoever in looking at them!!! I did go ahead and tell him that I was on a number of herbs and supplements with the goal of treating Lyme. He briefly looked over the supplement list and again shrugged his shoulders.
This then led me to ask him, in his opinion, is there any possibility that I have anything other than MS? Without any hesitation, he responded “No, you have the markers for MS.” We then went over the MS makers once again.
Basically, the reason that I was diagnosed with MS was due to two major markers. I have lesions on my brain and spinal cord and antibodies were found in my CSF that was not in the blood. He then continued to tell me he wasn’t really familiar with Lyme Disease and he could refer me to an infectious disease doctor, all while insinuating that it would be a waste of my time, as he was positive of his diagnosis.
We left the office with this closing thought from the doctor… MS is a clinical diagnosis and I am the neurologist and I get to make that call. If I could run a test for it, I would. I’m the neurologist, I don’t know about all of this green stuff, this isn’t what they teach you in neurology school. I’m a neurologist, I’ll give you drugs. That’s what they taught me. I’ll give you drugs.
So, just as a quick recap… You, Mr. Neurologist, don’t know anything about a disease that can can present itself identically to MS, which is probably one of the most common diseases that you diagnose and treat in your practice. And additionally, you are refuting medical test results in order to support your diagnosis with little care to if the diagnosis is actually correct or not.